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Presley - Battle with Neonatal Lupus

Lupus Pain/Problem Video Site
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Presley's first year Update 5/5/08 - these events led to her spastic diplegic cerebral palsy and dystonia. Please watch the follow up video, click on "more videos from jennnnn5"

Channel: People & Blogs
Uploaded: November 30, 1999 at 12:00 am
Author: jennnnn5

Length: 04:41
Rating: 5.0
Views: 13170

Tags: neonatal  lupus  sle  cns  immune  nicu  dystonia  Presley  CP  Sinemet  l-dopa  levodopa  

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Video Comments

ggimenes (November 30, 1999 at 12:00 am)
God bless you Presley and your family
LupusAwareness (November 30, 1999 at 12:00 am)
I know I'm not the first to cry while watching this video. My heart goes out to your family and this gorgeous little soul Presley. Lupus is frightening when you go through it yourself, let alone watching your precious baby fight the unpredictable effects of lupus. Stay strong.
jennaj198 (November 30, 1999 at 12:00 am)
Wow such a sad video I hope the best to her in life I am waiting for blood work results to get back for my diagnosis of lupus Presley will be in my prayers
se4biscuit (November 30, 1999 at 12:00 am)
GBU :)i believe the best will come to Presley as well.
chivi76 (November 30, 1999 at 12:00 am)
God bless Presley and you her parents...My heart goes out to you. I was diagnosed 11 years ago with Lupus and it's been a hard disease to live with. Poor baby having to live with this from day one. I love you Presley.
category10 (November 30, 1999 at 12:00 am)
Very powerful video. My daughter was diagnosed with Lupus 6 years ago at the age of sixteen. We are inspired because of your video. May the rest of life find it in its heart to shower you back ten-fold the love you showed in making this video. Philip
ILUVHORSES1981 (November 30, 1999 at 12:00 am)
God bless you and your family! Did your baby get neonatal lupus because it runs int he family? was there any history of this at all? I am just curious having Lupus myself (I am 28) and had a child last year who did not get neo-natal lupus thank God. I will pray for your family, keep the faith, with God all things are possible!
Kella86 (November 30, 1999 at 12:00 am)
You said a few times about doctors not giving you answers as to why this is happening... Please read EVERYTHING you can get your hands on about Lupus and exactly what it does to the body... Presley is an amazing little girl, I hope that she will be able to live a progressively for comfortable life, she definitely deserves it already after all this.
PaisleyPlace (November 30, 1999 at 12:00 am)
You're living what was my biggest fear after diagnosis 9 yrs ago now. I have SLE & Sjogren's in the mod- to severe stages; hwr, I'm thankful it's me & not my 2 girls though they aren't out of the woods. AI's run on both sides of my family. I'll keep all of your family & esp Presley in my thoughts & prayers in hopes for a cure or that she goes into remission; at least then she could enjoy her childhood. This is a travesty of life & esp on the heart of lupus sufferers. A cure is long overdo..
xXGabbiliciousXx (November 30, 1999 at 12:00 am)
awwGOD BLESS!

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