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annamarie543 (November 30, 1999 at 12:00 am)
i just want to say a big thank you for ur post im a 29 year old woman i told i had sle after i had my 1st stroke( ive had 2 in a year) .They have now found i have fibromyalgia and a pfo , im a single mother of a little boy age 22 monthes and in the uk most of the doctors dont think lupus is a real thing only my neuoloigist and my gp so i had to leave my home and move in with my mother to help out when she isnt in work and helps me when im in a bad flare up or trying out new drugs to help . x
tina7ful (November 30, 1999 at 12:00 am)
i would like to know does lupus affect ur eyes.
silverfox173 (November 30, 1999 at 12:00 am)
I have discoid Lupus it get's so bad that I do not leave the house as people stare and point at me. Even at the supermarket they will change lanes to avoid me. I take steriods but hate what they do to me. Quite by accident I had a gum infection and my dentist prescribed me an antibiotic, my Lupus dissapeared for a month, no moon mace no weight gain, I cant wait to get back to the UK to find out the name of this medication. I will keep you posted.
sonofmanchu (November 30, 1999 at 12:00 am)
How often do men diagnosed with Lupus? Does doing excises, having enough sleep daily and healthy diet help control lupus?
lexitroihannah (November 30, 1999 at 12:00 am)
Thanks for putting this up. I also have lupus i have SLE. i could never do what ur doing. i got mine almost 2 years ago i was 11 i was pretty young to get it. I was really upset & mine was BAD some of the doctors told my mom i wouldnt survive so it was really scary 2 but it changed my life! i hope urs is getting better. the steriods were horrible i lost all of my friends cuz of what i looked like + i fractured my ankle & have a bone fragment in my knee cuz of the rapid weight gain. thanks again
nabiji (November 30, 1999 at 12:00 am)
BTW, thank you for posting this video, I hope your soon able contain your lupus to a relatively manageable state.
nabiji (November 30, 1999 at 12:00 am)
I recently got a diagnosis ... I'm a 22 year old male. My ANA levels range on average between 400 - 650. X>2560 during 'flareups'. I've had over the years different symptoms however for the most part I've managed unknowingly without any medication. Recently I've been experiencing photo-sensitivity, and recently had a very obvious 'butterfly rash'. My question is, anyone else experienced intense and totally random feelings of extreme anxiety (panic)? Has medication like Panqueline helped?
Lacey1Spytfiyah (November 30, 1999 at 12:00 am)
my mother was diagnosed with fibro myalgia first then a number of other things now lupus....she has very bad flare ups that began at her feet now her mouth and face....please keep us in your prayers and i'll do the same!
kayleewyatt (November 30, 1999 at 12:00 am)
great video!
loserella55 (November 30, 1999 at 12:00 am)
Thank you for posting this video. I think I might have Lupus (I've been diagnosed with fibromyalgia but I haven't had blood tests so they don't really know what I have), and I don't really know how to bring it up to my doctors (They are nincompoops who don't really want to treat me at all). Any ideas? |
